Is anyone doing structured, crowdsourced pharma research?

Are there platforms to support: open or proprietary? Any insights welcome.

Exemplar: claims are made re: coconut oil and slowing the progression of Alzheimer’s. Anecdotal evidence exists (blog posts, youtube testimonials, etc.) How do we standardize the personal patient journaling, dosage measurement, inclusion of additional substances which may prove to be important in the results?

Update: just found (via

Pharmaceutical Research, Vol. 27, No. 3, March 2010 (# 2010) DOI: 10.1007/s11095-010-0059-0
Reaching Out to Collaborators: Crowdsourcing for Pharmaceutical Research
Sean Ekins and Antony J. Williams
Received October 23, 2009; accepted January 5, 2010; published online January 27, 2010

They mention specifically: