Are there platforms to support: open or proprietary? Any insights welcome.
Exemplar: claims are made re: coconut oil and slowing the progression of Alzheimer’s. Anecdotal evidence exists (blog posts, youtube testimonials, etc.) How do we standardize the personal patient journaling, dosage measurement, inclusion of additional substances which may prove to be important in the results?
Update: just found (via http://utcrowdsourcing.ideascale.com/a/dtd/Crowdsourcing-for-Pharmaceutical-Research/108117-12279) http://www.springerlink.com/content/u4g8255810208185/fulltext.pdf
Pharmaceutical Research, Vol. 27, No. 3, March 2010 (# 2010) DOI: 10.1007/s11095-010-0059-0
Reaching Out to Collaborators: Crowdsourcing for Pharmaceutical Research
Sean Ekins and Antony J. Williams
Received October 23, 2009; accepted January 5, 2010; published online January 27, 2010
They mention specifically:
- myExperiment http://www.myexperiment.org/ Workflows, communities
- DIYbio http://diybio.org/ Community for do-it-yourself biologists
- Protocol online http://protocol-online.org/ Biology protocols
- Open wetware http://openwetware.org/wiki/Main_Page Materials, protocols and resources
- Open Notebook science challenge http://onschallenge.wikispaces.com/ Crowdsourced science challenge—initially on solubility measurement
- UsefulChem project http://usefulchem.wikispaces.com/ Example of one scientist’s open notebook
- Laboratree http://laboratree.org/pages/home Science networking site
- Science Commons http://sciencecommons.org/ Strategies and tools for faster, efficient webenabled
scientific research - WikiPathways http://www.wikipathways.org/index.php/WikiPathways Curated biological pathways
- Open Source Drug Discovery http://www.osdd.net/home Collaboration around genomics and
computational technologies - SciClips http://www.sciclips.com Open Innovation Platform for Scientific Breakthroughts, Collaborations and Philanthropism